Superman!

Jacob has progressed really well over the last two days.  Today we were able to move up to the progressive care floor from the ICU.  He had his chest tubes removed this morning, he was weaned off of his oxygen all of the way, and he had both of his central lines removed.  He has definitely had some pretty bad headaches the last couple days, but this afternoon was the first time we got to see him back feeling pretty decent.  He talked to us and smiled a bit!

He did develop a clot in his leg where one of the central lines was, but it isn't too big of a deal.  We will have to give him shots for a little while to treat it, but it won't keep us in the hospital.  The clot is in an artery (and it is pretty much fully blocking it) but since it is in an artery, it can't go back to his heart and cause any issues.  His body has also kind of worked its way around it, as his foot is still warm (not quite as warm as the other, but not cold).  They still want to treat it though b/c they will be using his arteries in the future for caths and such.

All in all, he has done really, really well and we are so happy to almost be through this stage!  We are planning on getting out of here Sunday provided a roadblock doesn't jump up and try to stop us!  Apparently, Jacob really wants to be home to watch the Superbowl :).

Thank you for your continued thoughts and prayers!  We'll let you know how it goes!

One more surgery behind us!

Jacob had is Glenn procedure today and is doing well all considered.  He was able to come off of the ventilator in the operating room so he was breathing on his own when we came up to the ICU.  The surgeon, Dr. Peeler, said that everything went well, very straight forward and so now, we are just in healing mode.

Jacob isn't feeling great; the Glenn operation gives babies a headache that is pretty bad the first couple days, then steadily subsides over the next couple weeks.  This is caused by the change in blood flow that the surgery causes and the time it takes for the body to balance out.

Jacob was able to take some pedialyte this afternoon, then around 5 he took about half a bottle of breastmilk.  This seemed to help him calm down a bit.  He is still keeping his eyes closed and is pretty whiny/ grumbly all of the time right now as he sleeps.  Hopefully by tomorrow afternoon, he'll be a happier baby!

Getting Ready for the Glenn

Well, the day we've been waiting for/ dreading/ looking forward to getting over with is nearly here.  I know it has been a while since an update, but Jacob has been busy gaining weight and doing well and keeping us busy (his brother has helped with that too!).

Chunky Monkey

If you can't tell, he has gained some weight!!!  He is up to nearly 14.5 lbs.  We joke that we let him teeth on frozen butter :).

A few weeks ago, Jacob has his routine catheterization to check out his heart.  Everything looked great, actually the Cath Dr said that he had the best heart function for an HLHS baby that he had seen in the last year!  There were no surprises and based on that, we went ahead and scheduled the surgery.  His Glenn procedure will be Wednesday (the 29th).  Tomorrow he has a pre-op visit, just to do blood work and meet with anesthesia, do an X-ray, etc.  We'll be going back to the awesome Ronald McDonald house tomorrow night and will be at the hospital first thing in the morning Wednesday (6 AM!) as Jacob will be the first case.

You may be wondering, why the surgery now if he is doing so well?  Well, basically, there is no benefit to wait any longer to do the surgery.  Jacob may be able to go another month or two before he has to have the surgery, but we might as well and get it over with now while he is healthy and bug free!  We were told to expect about a week in the hospital, so we are keeping our fingers crossed for that or even better if we are lucky!

So, all of that being said, pray for our little Superman!!!

Super Turtle!

We are all rooting for a quick recovery!!!

Supermen!